From Dismissal to Discovery: A Patient’s Journey with the Undiagnosed Disease
A patient and family share their journey through complex illness and medical uncertainty, alongside Dr. Rafferty’s approach grounded in listening, trust, and believing.
Phoebe’s Story: A Medical Mystery
Featured on Symptomatic: A Medical Mystery Podcast
This podcast highlights the experience of a mother and daughter navigating years of medical uncertainty, unanswered questions, and the emotional toll of not being believed. It also reflects Dr. Rafferty’s growth as a
psychologist, as she came to understand just how complex the mind and body can be, and learned the importance of slowing down, listening more deeply, and trusting the expertise that patients and families hold about
their own lived experience.
FND Warrior Support &
Advocacy Webinar
This educational webinar shares the lived experience of an individual living with Functional Neurological Disorder (FND). Topics include medical dismissal, understanding FND, navigating healthcare systems, the impact of language and validation, self-advocacy, and finding hope in the midst of uncertainty.
One message that resonated deeply was:
“Words matter more than people realize.
One sentence can either create hope
or create more trauma.”
Content Note: This webinar includes discussion of significant negative experiences within healthcare settings, including medical dismissal, trauma, and patient advocacy following harmful interactions with medical professionals. Some viewers may find portions of this discussion emotionally difficult.
Presented by Roxie and RISE: FND Warrior Support, this resource offers education, encouragement, and lived experience for individuals and families navigating FND.
