Connective Tissue Disorders

Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) are connective tissue conditions that can affect joint stability, chronic pain, fatigue, autonomic functioning, digestion, and many other aspects of daily life. Symptoms of EDS and hypermobility can vary considerably from person to person and may affect school, work, physical activity, and daily functioning. The resources below offer education, practical strategies, and support for children, teens, young adults, and families navigating pediatric EDS, hypermobility, connective tissue disorders, POTS/dysautonomia, and related health concerns.

Raregivers

Raregivers provides emotional support, education, wellness resources, and community for patients, caregivers, and professionals navigating rare, chronic, and complex health conditions.

Visit Raregivers

Chronically Iconic Club

Chronically Iconic Club offers connection, support, and community for people living with chronic illness and chronic pain.

Visit Chronically Iconic Club

EDS Connective

EDS Connective provides specialized virtual evaluations and education related to hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder.

Visit EDS Connective

InclusiVibe Foundation

InclusiVibe Foundation provides education, advocacy, research, and community for people affected by complex neurological and connective tissue conditions.

Visit InclusiVibe Foundation

Bendy Bodies Podcast: Conversations about hypermobility, EDS, POTS, MCAS, and life in a complex, connective-tissue body
Ehlers-Danlos Society (EDS)
EDS Guardians Pay it Forward
Aids and Adaptations for EDS – EDS News Article
Jelliebend – Supportwear designed with gentle compression. Use code HopePsychology&Jellie
Mobility Aids for EDS – Review Article
Non-Drug Treatments for Ehler-Danlos Syndrome