Rare and Undiagnosed Medical Conditions

Rare and Undiagnosed Medical Disorders

• Bendy Bodies Podcast: Conversations about hypermobility, EDS, POTS, MCAS, and life in a complex, connective-tissue body
• Ehlers-Danlos Society (EDS)
• EDS Guardians Pay it Forward
• Digging Deep with the Shadow’s Edge Therapeutic Game and App
• Dysautonomia Support Network Handbooks
• Mayo Clinic Center for Individualized Medicine
• M Health Fairview Pediatrics Rare Diseases
  • Rare Disease Department
• Michael Farrell, MD, Minnesota
  • Primary Care Provider for Complex Patients
• National Organization for Rare Disorders
• Non-Drug Treatments for Ehler-Danlos Syndrome
• Postural Orthostatic Tachycardia Syndrome (POTS)
  • POTS UK
  • Standing Up To POTS
• Undiagnosed Diseases Network (UDN)

— Assistive Technology, Mobility Devices, and Sensory Supplies

• Aids and Adaptations for EDS – EDS News Article
• Fun and Function Online Shop – Sensory Toys and Solutions
• Jelliebend – Supportwear designed with gentle compression. Use code HopePsychology&Jellie
• MN Department of Administration STAR for Assistive Technology
• Mobility Aids for EDS – Review Article
• Pacer Center’s Simon Technology Center (STC) and What is assistive technology?
• Special Needs Toys

— Evaluations:  Psychological and Neuropsychological

• Developing Minds Psychology with Dr. Watson
• Developmental Discoveries
• Monarch Learning and Attention Center
• Pediatric and Developmental Neuropsychological Services with Dr. Miller
• Psychology Consultation Specialists
• Stepping Stones Clinic
• Rischall Psychology Services

— Family Therapists

• Lauren Azbill, MA, LMFT at Envision Counseling
• Jenny Decker, MA, LMFT, ADHD-CCSP Private Practice with In-Home Services
• Hannah Holwell, MSW, LICSW at Psychology Consultation Specialists
• Luke Knutson, MA, LMFT at Innovative Psychological Consultants
• Katie Troyak, MSW, LICSW at Psychology Consultation Specialists

— Couples Counselors

• Rachel Frailich, PsyD, LP 
• Mark Glover, MA, LMFT at Connected Life Counseling
• Tamar M. Marmor, MPS, ATR, LMFT at Treestone Therapy
• Annie Schwain, MA, LADC, LAMFT at Voda Counseling

— General Education on Health and Mental Illness

• American Academy of Child and Adolescent Psychiatry
  • http://www.aacap.org
• American Academy of Pediatrics
  • https://healthychildren.org
• American Psychological Association Help Center
  • http://www.apa.org/helpcenter/index.aspx
• Minnesota Association for Children’s Mental Health (MACMH)
  • http://www.macmh.org/
• National Alliance on Mental Illness (NAMI)
  • https://www.nami.org/
• National Institute of Mental Health
  • https://www.nimh.nih.gov/index.shtml

— Integrative Medicine

• Children’s Hospitals and Clinics Integrative Medicine Department
  • https://www.childrensmn.org/services/care-specialties-departments/integrative-medicine/
• Partners in Resilience
  • https://www.naturalmentalhealth.com/
• Penny George Institute
  • https://wellness.allinahealth.org/servicelines/802
• Well Connected Twin Cities Directory
  • https://wellconnectedtwincities.com/
• ImaginAction:  Clinical Hypnosis for Children
  • http://imaginaction.stanford.edu/

— Learning and Social Skills Support

• Grove’s Academy Learning Center
  • https://www.grovesacademy.org/learning-center/
• LifeFX Executive Function Coaching
  • https://www.lifefxmn.com/
• PACER Center: Champions for Children with Disabilities
  • http://www.pacer.org/
• West Metro Learning Connections
  • http://www.wmlc.biz/

— LGBTQ+

• Gender Spectrum
  • https://www.genderspectrum.org/
• Gender Odyssey
  • http://www.genderodyssey.org/
• Minnesota Resources for Queer & Trans Youth
  • https://www.reclaim.care/what-we-do/resources-for-queer-and-trans-youth.html
• PFLAG
  • https://pflag.org/

— Mindfulness and Meditation Practice

• 51 Mindfulness Exercises for Kids
  • https://www.waterford.org/resources/mindfulnes-activities-for-kids/
• Calm Website and App
  • https://www.calm.com/
• Change to Chill
  • https://www.changetochill.org/chill-breaks/
• Headspace Website and App
  • https://www.headspace.com/
• U of MN Bakken Center for Spirituality and Healing
  • Community Events

— Obsessive Compulsive Disorder (OCD)

• Anxiety Treatment Resources
  • https://www.anxietytreatmentresources.com/resources/
• OCD in Kids
  • https://www.ocdinkids.com/
• Rogers Behavioral Health – Virtual Caregiver Support Group
  • Parent Educational Support Group – Twin Cities
• Supportive Parenting for Anxious Childhood Emotions
  • SPACE Parent-Based Treatment Program
• Unstuck:  An OCD Kids Movie
  • https://www.ocdkidsmovie.com/

— Positive Psychology

• Authentic Happiness
  • https://www.authentichappiness.sas.upenn.edu/

— Psychiatry and Developmental Pediatrics

• Acute Psychiatric Services at HCMC
  • Call 612-873-3161
• Child and Adolescent Psychiatrists
  • Dr. Anna Donoghue at Allina Health
  • Dr. Elizabeth A. Reeve at HealthPartners
  • Gerard Balan, MSN, PMHNP-BC
  • Dr. Henry Emmons
  • Dr. Larry Young
  • Dr. Miranda Dulek
  • Psychiatric Assistance Line (PAL)
• Clinics
  • Hyland Psychiatry for 15 to 65 years of age
  • MSP Psych Services
• Developmental Pediatricians
  • Dr. Andrew J. Barnes at University of Minnesota
  • Dr. Daniel S McLellan at Children’s Minnesota
• GeneSight Testing
  • What is the GeneSight test?

— Substance Abuse, Addiction, and Recovery

• Alcoholics Anonymous
  • https://www.aa.org/
• Center for Internet Addiction
  • http://netaddiction.com/
• Hazelden Betty Ford Foundation
  • https://www.hazeldenbettyford.org/treatment
• Substance Abuse and Mental Health Services Administration (SAMHSA)
  • https://www.samhsa.gov/find-help/national-helpline

— Trauma Treatment and Resources

• Accelerated Resolution Therapy
  • ART
• Bessel Van Der Kolk MD
  • The Body Keeps The Score
• The National Child Traumatic Stress Network
  • NCTSN
• Trauma-Focused Cognitive Behavioral Therapy
  • TF-CBT

* Hope Psychology Practice is not responsible for the content, claims, or representations of the listed resources.